Case Study
Accommodating Patients with Physical Disabilities:
An International Qualitative Study
Osteogenesis Imperfecta, also known as Brittle Bone disease, is a genetic disease in which bones break easily. The disease ranges in severity but often limits mobility.
Our client wanted to understand more about the accessibility needs of people with Osteogenesis Imperfecta.
Amplinate recruited and interviewed participants in order to develop appropriate accommodations for their clinical trial experience and treatments.
Goal and Research Questions
The research was focused on understanding the accessibility needs of people who have Osteogenesis Imperfecta and any resulting physical disabilities.
We aimed to identify accommodations to ensure patients feel comfortable and successfully complete the clinical trial and treatment.
What is the range of physical abilities and disabilities among these patients? What are their needs in terms of mobility?
What barriers might they experience as they travel to and navigate treatment facilities? As they receive medications and treatments and use medical devices?
What assistance and accommodations do they need from health insurance companies, pharmaceutical companies, and caretakers?
Our Approach
Background Research
Our researchers conducted secondary research to fully understand the disease cause, sequelae, and existing treatments before speaking with patients.
Recruitment
In-house recruitment
Targeted and efficient recruitment
Remote IDIs
75 minutes each
Conducted via videoconferencing in two phases
Brazil & Mexico
Markets
Participants
Timeline
N=20 (10 in each market)
People with confirmed diagnosis of Osteogenesis Imperfecta with varying severity.
6 weeks
Impact
Generated understanding of the holistic impact of Osteogenesis Imperfecta on patients’ lives and physical abilities.
Led to the development of an accessible clinical trial and treatment plan. The plan was later approved by regulatory agencies.